Wait… don’t we do that every day?? Yes, it’s true, every day at The Stolen Colon is Ostomy Awareness Day, but the first Saturday of October is the official World Ostomy Day. While I obviously don’t need such a date to get me talking about it, I’m glad that there is a day where we can put that name on it.
Talking about having an ostomy is not as easy as it may seem. It’s hard for me some days to sit here and talk about all of the things that I do. Some times I’ll even type things out and wonder if I really want to put that out there for all of the world to see. It’s those moments that I just close my eyes and hit the “publish” button before I have enough time to really think about what I’ve just done.
But then I remember How I felt when I was first faced with the idea of having surgery. I was so scared and hardly knew anything about ostomies. I had this totally skewed idea that it was this cylindrical kind of pouch that hung off to your side and could not be hidden under clothes. Little did I know, that it’s likely I’ve run into some people in my past who have had ostomy bags and I didn’t even know it. But at that time, I really needed someone else who could understand. I needed someone who could tell me that it would be alright.
So I hit the internet and found out that I was not alone. There were several other beautiful women who were living amazing lives with their ostomy bags. And even though I will be forever grateful to those women who helped me through a very difficult time, I saw that there wasn’t enough information out there. There weren’t enough people standing up and saying, “I have an ostomy. And that’s OK.”
That’s when I decided to start writing on here. I simply hoped that I could be that person to even one other person who was scared and in desperate need of someone who could honestly tell them that it was going to be alright. And that’s what keeps pushing me to this day. That’s why I keep typing out words like “poop” and “bag leak,” even though those are not things that I would usually talk about. I do it because this world is so in the dark on what having an ostomy really means (or even what it is, in most cases.)
So on World Ostomy Day this Saturday, let’s talk about it. Let’s show the world who we are and what we can do. Let’s show them again that an ostomy is not a tragedy, but for people like me and for many of you, it is a beautiful thing.


11 Comments
I had permanent ileostomy surgery in July. I found your blog and it has helped me in my recovery. You are inspiring and give me hope while I have had setbacks in my recovery. Just wanted you to know that you have made a difference in my life. Thank you!
October 4, 2013 at 9:59 pmGillian, thank you so much for your kind words. It is really encouraging to know that my story has helped you in some way. I hope your recovery is going well.
October 11, 2013 at 10:48 amStephanie I have to admit I was very in the dark on the subject. Thank you for educating me!
October 5, 2013 at 9:05 amMolly
You brought tears to my eyes. But they’re happy tears 🙂 thank you and please continue to tell your story. So many of us suffer in silence so its so nice to hear strong, courageous, beautiful women like yourself speak out and say it will all be okay.
October 7, 2013 at 1:31 pmThank you, Lana. I really appreciate that.
October 11, 2013 at 10:57 amThank you for telling your story. I may have to face this and I’m scared. You made me
August 24, 2014 at 11:02 pmfeel better and seeing such an attractive lady modeling a stoma is great!!!
Ileostomate for 34 years due to UC. 2 children, one pré ostomy and my son born after surgery. Married fir 41 years, always worked, traveled, active in UOA and UOAA and always involved with my local support group. Now retired with 5 grandsons. I have never looked back, my ostomy saved my life and I would not trade it in. Not much Internet 34 years ago so I relied on my support group and our wonderful ostomy nurses for all my info. Rock on!!
September 19, 2015 at 6:13 pmI’ve read your blogs faithfully. Even re reading them while in the hospital waiting to see where my life was going. You have given me hope that this bag on my side is just a new way to poop and not spending my life in the bathroom. I am like you. Though I don’t blog about it, I have made it my mission to help other ladies going through facing their Ostomy. Though I’m new to it myself still (7/28/15) I can be a ear and shoulder for others. Keep up your work Stephanie!!
September 27, 2015 at 2:25 pmMichelle, I love hearing your positive attitude. I’m so glad things have been going well since your surgery! You are a great voice for all of us.
September 27, 2015 at 3:03 pmThank you for your blog! It’s been inspirational! I have upcoming surgery this wed. (Sept 28) and your blog has helped prepare me! 🙂
September 25, 2016 at 7:28 amJacquie, thank you so much. I really appreciate it. I’m glad you’ve been doing some research beforehand. I think it’ll really help! Good luck with the surgery and please check in if you have any questions, need any advice or just want some others to chat with who can understand.
September 25, 2016 at 12:12 pm