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Our scars make us

When I was first faced with the decision of going through with having my colon removed and getting an ostomy, I was very concerned about the scars the surgery would leave behind. I don’t consider myself a particularly vain person, but as a 26-year-old woman, this was a very difficult idea to come to terms with. I was married less than 2 years at the time and I was afraid of living a life where I no longer felt confident or attractive.
For me, this was one of the more difficult things to accept. But ultimately, I realized that it didn’t matter. It was a small price to pay for feeling better and no longer living with the day-to-day symptoms that I had grown very accustomed to.
I have also been very blessed in the course of this whole thing. For one, I have an incredibly supportive husband. He has always assured me that it would make no difference in our relationship and it never has. On top of that, I have a great surgeon right around the corner from me who has walked me through this whole process and done both surgeries completely laparoscopically. There was a chance both times of needing to have a larger incision, but neither time was it necessary, and I’m very thankful for that.
Such of big part of my recovery was allowing my new scars to
surgery recovery scars pain stephanie hughes stolen colon crohns ostomy ileostomy blogheal. For a while they were covered in this hardened gel and a little sore to the touch or when I would twist the wrong way. It’s hard to tell in the picture, but I have 10 small incisions now: 6 from the first surgery to remove my colon and 4 from the second one to remove the final new inches of colon and my rectum. Plus, my belly button has been opened twice and of course there is the ileostomy itself.
I have come to realize that these scars say a lot about me. And I’m sure that your scars say a lot about you. Every scar comes with a story, a memory. Our scars make us who we are. And I’m not only talking about physical scars. We have many scars on our heart and in our mind. Some of these we proudly show off as a sort of trophy of our accomplishments. Others we prefer to keep hidden and perhaps some day forgotten. But regardless of that, every scar has changed the course of our life and is proof of what we’ve been through and what we’ve endured and made it through.
I wouldn’t change one scar. While there are things in my life I wish I would’ve handled differently or avoided altogether, I can never regret those decisions or experiences because they have made me who I am. And I’m OK with that.

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23 Comments

  • Reply Reagan

    Steph,
    This post is so beautifully written. I immediately connected with you. Our scars do define us in so many ways. Thanks for sharing! (Oh, and cute yoga pants my pretty!)
    Love,
    Rea

    June 13, 2013 at 10:15 pm
    • Reply Stephanie Hughes

      Thank you, love.

      July 31, 2013 at 3:18 pm
  • Reply Amanda

    I think this post was just an excuse to show off your rockin’ abs. You go, girl!

    June 13, 2013 at 11:02 pm
    • Reply Stephanie Hughes

      😉

      July 31, 2013 at 3:17 pm
  • Reply Dave Rudzin

    You are a beautiful young lady and should be proud of what you have and what you will accomplish.

    July 2, 2013 at 4:41 pm
    • Reply Stephanie Hughes

      Thank you, Dave.

      July 31, 2013 at 3:17 pm
  • Reply Tay

    Thank you for this. For your confidence, especially to share your pictures. I recently had a laparoscopy and as the tape falls off and I see the scars, I have crumbled a bit. How can I deal with this? What now? Why me? I initially told my Mom that I should feel blessed because I lost 1/2 liter of blood and things could have been so much worse. I am blessed. But the slight narcissist in, that vain little creature, is miserable at the destruction of my belly. Thank you!! I am going to try to stay positive. Embrace it. And one day, be just as brave as you.

    September 23, 2013 at 11:07 pm
  • Reply Laura

    Nice work! And your bag is so flat.. What kind of appliance do you use? Is it a one piece?

    January 6, 2014 at 11:30 am
    • Reply Stephanie Hughes

      Hey Laura, it’s actually a 2 piece. It’s the Coloplast flex, so it has the base and the bag, but they stick together rather than snapping into a ring. I love them!

      January 6, 2014 at 9:28 pm
      • Reply Laura

        Hey Stephanie, so you use two piece bags with an adhesive coupling system? Are these reliable? How long does the seal last?

        January 7, 2014 at 11:56 am
        • Reply Stephanie Hughes

          They have been for me. I’ve been wearing them for almost 2 years and only once have had a leak from in between the pieces, and it was minor. And I sometimes wear my bag up to a week and even then haven’t had an issue.

          January 7, 2014 at 11:58 am
          • Laura

            I didn’t know that these bags were so reliable. I’ve always been told they’re prone to leaks… Have you ever had regular two piece systems (or one piece)? What is the biggest advantage of the two piece adhesive systems? Is it easy to swap bags (small bags when going out etc) and leave the wafer in place?
            And how do you manage to use a bag for up to a week? Do you use extra paste? And what about the filter?

            January 10, 2014 at 12:29 pm
          • Stephanie Hughes

            Laura, I have tried all of the different types: the 1-piece, the 2-piece snap and the adhesive type. I tend to get leaks with the 1-piece, which is why I don’t use them. I’m not sure why it happens that way, but I can’t wear one of those for more than a day or 2. The 2-piece snaps are fine, but I don’t like the feeling of them as much or they way they look under clothes. The advantage to me is that they are easy to put on and they lie very flat under clothing. I don’t use small bags to swap out, but I would think that you could. I just can’t speak from experience.
            And I definitely don’t always last a whole week, but sometimes I can. I don’t necessarily do anything different, I think just the location of mine provides a good spot for it to stick to. And the filter does get a little icky, but doesn’t cause any problems. Like I said, it’s not an every week occurrence.

            February 9, 2014 at 10:30 am
      • Reply Krystin McMahon

        Do they make those using a convex barrier? Do you know their opening sizes? I need like 7/16 I have a tiny stoma….more like a large nipple! Lol

        January 9, 2014 at 2:38 am
        • Reply Stephanie Hughes

          Yes, Krystin, you can get in convex or nonconvex. I’m not sure all of the different opening sizes. I use the cut-to-fit. But you can search on your ostomy supplier site and see exactly what’s available.

          January 9, 2014 at 8:59 am
  • Reply Krystin McMahon

    I have a temporary ileostomy. In June it will be one year. I really am excited for the Jpouch surgery. I’m having a lot of trouble with weight. What do you suggest I do to help tone ? I have been told that straight crunches are a no no. Plus it hurts to badly …
    Krystin

    January 9, 2014 at 2:30 am
    • Reply Krystin McMahon

      Sorry- I have a temporary ileostomy from ulcerative colitis. Est: 2004 diag:2005 operating/ bye bye 6ft of colon and appendixes lol
      Km

      January 9, 2014 at 2:34 am
    • Reply Stephanie Hughes

      Hey Krystin, when are you set to have your next surgeries? I hope you are doing well with the ostomy, even temporarily. As far as toning… it is difficult. I do some crunches, but keep it to a minimum. But obviously, if it’s hurting, I would stay away from it. Doing yoga I think is a great option. Poses like plank and boat help tone, but don’t put a whole lot of pressure on your stomach. If others get into doing crunches, I usually just hold the pose. Those are at least some of the things that I have tried and done well with.

      January 9, 2014 at 9:25 am
  • Reply KM

    Awesome attitude! Thank you for your posts! Great to hear from others who have been through what I have. Thanks!

    July 2, 2014 at 6:28 pm
  • Reply Pete Reed

    Stephanie,
    It’s great to hear from others that have the same issues. Please continue to be a champion for our cause! After surgery for cancer I have a colostomy and have managed in silence for the past 12 years. Remember scars are better than tattoos as scars come with a story that often needs to be shared. Many people will have to deal with an ostomy of one kind or another in their life time. That means what you are doing needs to be broadcast widely as it will help more people than you will ever know. I have found that with a little preparation I can do all of the activities I use to enjoy before my operations. Sometimes there is discomfort but that just lets me know that I am alive which is better than the alternative.

    October 17, 2014 at 3:12 pm
    • Reply Stephanie Hughes

      I really love your optimism, Pete. And I agree, a little preparation can go a long way when living with an ostomy, and often that’s all you need.

      December 5, 2014 at 9:47 am
  • Reply Hiedi

    Well said! I have had the very same thing as you. My scars are my story and proud of my strength. I would change one thing. And like your husband, mine never thought twice about what things would look like. He just wanted me to feel better and have a life to enjoy with him. Before my illeostomy I couldn’t do a lot of things he did, although I tried, but I’d be to sick and weak most of the time. Now I have a life, a beautiful son and I can do anything I want with my husband and as a family. My illeostomy saved my life and had been a blessing that I will always carry with me.

    December 16, 2015 at 6:33 pm
  • Reply kimber

    I have crohn’s disease and surgery scars of my own and ostomy scars from my colostomy and i have an ileostomy… I just want to tell you that your scars are beautiful. You look amazing. I hope you heal on the inside as well as you’ve healed on the outside.

    December 16, 2015 at 7:21 pm
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